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All posts for the month October, 2011

Remembering to be Thankful For What We Have~ The Lupus Magazine article for November

Published October 30, 2011 by Kristel Goodspeed-Correa

Wow..its hard to believe it is already November!  Thanksgiving is just around the corner.  While we should always remember to be thankful for the things in life that we do have, traditionally this is the time of year where we tend to think upon it so much more.

Sometimes that is easier said than done, especially in tough, economic times.  Money is tight, worries about how you will pay your bills, whether or not we’ll have a job tomorrow, and so many other things..  Chronic illnesses compound these feelings of woe.  It is essential for our own well-being to try to turn these negatives into positives to the best of our own abilities.

Sometimes being thankful for the little things in life can be a stepping stone to a happier you.  It is tough enough to always be sick all the time, but we can chose on how we deal with it.  Regardless of what we decide, we are at the mercy of whatever course our diseases take.  We can either be miserable or we can accept what we cannot change, make the best of a bad situation and try to live through it as happy as we can.

Stress (and feelings of misery/depression) feed fuel to our illnesses.  Why feed our Monsters  any more than necessary?  No one is happy about being chronically ill, that’s a fact.  No one expects you to be.  It stinks actually, so we must think to ourselves– how do we take a stinky situation and make it smell a lil bit more like roses?   What is it that does make us truly feel happy?  And try to bring forth more of that into our lives to help brighten up even our darkest days.

Sometimes we need to take the time to reflect on whatever good things life does throw our way.  Be thankful we have those and to try not to dwell so much on the bad things.  Life is full of beautiful and wonderful adventures and experiences.  Sometimes we just have to look a little harder or deeper to find them and enjoy what we do have.

Happy Halloween~

Published October 30, 2011 by Kristel Goodspeed-Correa

Monsters, Goblins and Ghouls take over the night;
Giving everyone they encounter somewhat of a fright,

Hiding deep within the shadows, they lay in wait;
For some tasty unsuspecting human to meet their fate,

Wicked Witches casting unearthly spells;
summoning up the demons of hell,

Zombies wandering out from beyond their graves;
Looking for warm, inviting, scrumptious brains,

Werewolves howling at the moon’s eerie glow;
Sending shivers of terror up the spines to all that know,

Vampires fangs sparking with the freshly drawn blood of their prey;
Hunting all through the night while they hide in seclusion at the dawn of day,

Ghosts  enjoying their evening with every haunt;
Some playful while others more sinister, but all  love to taunt,

Paralyzed in fear, all you can do is run for your life and scream;
Waking up in a deep sweat, you realize …it’s all been a very bad dream.

Happy Halloween 🙂

This new poem reminds me a lot of the one I wrote about a decade ago  when I used to write poems much more frequently.  So I will share that one as well (especially since its one of my favorite ones ever)

Finally, it is nearly October 31st, HALLOWEEN;
that time of year, when it is fun to scream,
Children everywhere dress in the most frightening of clothes;
going door to door trick or treating to the houses they chose,
Jack-O-Lanterns give the night an eery look;
while the children eat most of the candy they took,
Ghouls, goblins, witches, zombies and bats;
remember to watch out for that superstitious black cat,
vampires out at the midnight hour;
searching for blood with their unearthly powers,
Ghosts will haunt as they roam through the night;
giving all who will see them, much more than a fright,
Freddy Krueger…a vicious man, who is more than a creep;
and if your arent careful, he come for you when you are asleep,
The headless horseman gallops around;
his head in his hands, as he searches the town,
The witches in Salem will stir up their brew;
filling it with toads and snails, and hopefully not of you,
Costume parties everywhere…Just look at the flyers;
a great time will be had so long as you avoid Michael Myers,
Cemeteries will be filled with the walking dead;
and you can be sure, it is not all in your head,
Be nice to the monster, Frankenstein;
He is misunderstood, and is gentle and kind,
Remember that Halloween is supposed to be fun;
and to be leary of pranks, that will hurt anyone.

My Lupus Family and how they are ALWAYS there for me- The Lupus Magazine Article for October 2011

Published October 2, 2011 by Kristel Goodspeed-Correa

I thought for International Lupus Awareness Month (October), that I would  take this time to personally thank the entire Lupus Community for ALWAYS being there for me when I need them the most.

Here in the US, our Lupus Awareness month was changed to May so as not to conflict with Breast Cancer Awareness, which is also in October…but despite that, we are still part of the global community and stand strong with the rest of our international friends.  Lupus knows no boundaries, it effects people of all races, gender, countries, religions and even our 4 legged friends too.  It does not discriminate.

When I was first diagnosed, I remember how lost and afraid of the unknown I was.  I was literally terrified.  I had heard of Lupus prior to that but really had no knowledge of it whatsoever.  You google statistics, etc on the internet and at the time, there really was nothing encouraging  that I was reading.  Doom and Gloom.  And lots of the information available was confusing.

I remember reading how there was no new treatments at that time in over 50 years. Most of the treatments were considered “off-label” (created for other diseases, not Lupus).  Also, the medications being used are highly toxic!    What the heck?!!!!!    That made me SOOOO ANGRY!  I felt like no one cared about us.  Why werent there any new medications?  Was it because we were as a community predominantly women and we were being discriminated against by the medical community?  Lots of anger and resentment popped into my head.

I remember stumbling upon an article written about Breast Cancer around that same time period.  Basically, the article told the history of Breast Cancer Advocacy and how they went from being a virtual unknown disease to one that everyone became familiar with.  It told how the early Advocates literally walked door to door to companies, called them daily urging them to help make a difference.  They never gave up..they kept trying everything that they could think of to get the Corporations to take on their cause and it eventually worked.  15-20 years ago, no one really knew much about Breast Cancer, but advance ahead into the future a few decades and now everyone knows what it is.

I decided at that time, that I would do anything and everything in my power to try to change the future for Lupus too.  Dont like whats happening?  Change it- make a difference  😉  God blessed me with a big mouth and a vocal personality and voila here I am now.

I have been blessed to have met some remarkable Lupus patients from around the World.  I know people from almost every continent with the exception of maybe Asia.  Not sure why that is..but maybe in time, that will change also.  It is such an honor for me to have gotten to know people from all over the world and to see things from their perspectives.  I totally love my international friends.  They bring me such joy and love.   I think if our own governments would take the time to get to know people from other countries on this kind of a level, there would be hope for World Peace.

My Lupus family means the world to me.  They are one heck of an awesome group of people!  They bring me hope, love and encouragement at every turn.   I have received so many letters of thank you from some of them that have literally brought me to tears because it touched my heart so much.

From the bottom of my heart, Thank you for everything that you do for me, my Lupus Friends.  I love you all so much. Sending lots of love and hugs your way and wishing pain-free and symptom-free days xxooxx

[wearing my orange colors to support my international friends during International Lupus Awareness Month]

Orange is the international color of Lupus Awareness and Purple is also a Lupus Awareness color here in the US for organizations like the Lupus Foundation of America and the Alliance for Lupus Research.  Just in case you were wondering about why the different colors because it does get confusing.

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